I don't always have the patience that I should late at night when it comes to Gianna, especially when I'm tired and she wakes me up. If I can't get her to sleep, I am quick to feed her in order to help her drift off to sleep rather than make her cry-it-out. Bobby has more patience than I do, singing to her and getting up with her with amazing energy in the middle of the night. If I am well rested, I can usually handle anything she throws at me, but when I'm tired, it's much harder for me to be patient.
There is a little boy named Tripp Roth from Louisiana who had a skin disorder which took his life this past week. He was in constant pain everyday for the 2 years and 8 months that he lived, and his mom devoted her life during that time to caring for him. She couldn't change his diaper like a normal baby, or feed him, or give him a big hug. She watched everyday as her little boy broke out into open soars at the smallest of touches, and she sat with him in her arms as he took his last breath a few days ago.
I sob everytime I read her blog about Tripp, and her story inspires my daily patience. How can I be frustrated at all with my baby when she is perfectly healthy and happy? I mean, Gia can smile at me, snuggle up against my chest, roll around on the floor, and be picked up & comforted when she cries. I am so blessed. Thanks to Tripp, I look at her and am reminded how precious this time with her is. Sleep can wait. Right now I want to soak up every moment I have with Gia, whether it's the middle of the day or the middle of the night. Thank you Tripp, for your legacy. Thank you to his mom, Courtney, for her courage, patience and love.
If you have time, please read her blog. It is moving beyond words, and it has changed my life. Pray for Courtney and her family as they grieve over the loss of Tripp.
Her blog, "EB"ing a Mommy: http://randycourtneytripproth.blogspot.com/
A news article about Tripp: http://www.dailymail.co.uk/health/article-2087209/Tripp-Roth-dead-EB-sufferer...
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